Friday, January 25, 2013

Wednesday 23 January 2013

I had my follow-up appointment today with Dr R.  As I expected he didn’t have any more/different information than he did last time.  This drug appears to be working its magic still and the tumors continue to shrink.

He reminded me that this would be his last visit with me at this clinic and asked if I was going to follow him to Salem (about an hour drive south of here). I told him yes! I wasn’t about to break in a new DR. He Laughed at me. So I will see him around the end of April 2013. He told me to keep up the good work. 

Asked me if I was still walking and I told him, “no my feet are acting up, I’m now getting blister BETWEEN the toes, and they are very painful”.  He says that’s a strange reaction and he’s pretty sure it’s not from the drug.  I told him to leave it to me to find an obscure reaction to a drug.

My friend Jean B who opened her home to me when I first started going to National Institutes of Health (NHI) in Bethesda, MD, was out on the West Coast for a very brief visit and I had a chance to go and visit with her.  It was great to see her again, so sorry it was such a short visit but it was a good one. I really can’t thank her enough for her hospitality in 2010, to me, a total stranger to her, to see if I qualified as a candidate for their study, which I did get into, however my Tumor didn’t care for, or liked their brand of drugs as it thrived on it instead of shrinking. So that was short lived experience, traveling back and forth for treatments.

So we will continue on with this drug as long as it continues to work. 

I do want to thank you all for your support as I travel this rocky road to remission. ONE day I WILL OVERCOME and get there again.

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