Wednesday, July 28, 2010

Sunday 25 July 2010 thru Wednesday 28 July 2010 Cycle two Treatment one.

Home again at last. Yet another memorable trip. I keep providing such FUN times I’m going to run out of people to go with me. there isn’t really time for sightseeing.

My granddaughter Sarah and my sister-in-law Michelle came with me this trip. There was major thunder storm that went thru just before we got here---delayed our arrival by 30 min. Had a taxi ride from HELL----trust me the NY Taxi drivers that you see in the movies----they really do exist. Then got to the hotel and they met us at the door with Glow sticks----must be an omen eh? giggle it was!! the power was out according to the Hotel it was the 2nd largest power outage for PEPCO (power company)---So no internet access, no charging electronics, and Most importantly no AC!! In 100 degree weather with 50 -85% humidity. So not much in line of food at the restaurant---salads or sandwiches. Fortunately NIH has own power plant/or major generators that allow for charging of the electronics and nice selection of food stuff from their restaurants. And most importantly AC. Guess where we spent most of our time just hanging in the lobby.

----Had to have a MRI of my head this trip ---it was most annoying---all sorts of sounds no flashing lights though. Jet planes, jack hammers, soft noises, ticking noises, loud noises, high pitched noises, low pitched ones, constant pounding noise.---you get the idea seem to go forever 20-30 mins. maybe
----these guys take my vision problems seriously---hmmmm

Tuesday at 7:30 AM just as I was stepping into the shower Sarah came in and flipped the light switch and "let there be light" she heard the fan come on and then the TV Flashed at her, so she knew that the power was finally back.

Security has been the pits about Keep-Her this trip. Saying that she NEEDS ID so I ask the clinic and they say NO SHE DOESN"T cause she's a service dog not a Therapy dog and YES the Clinic and main hospital knows that there is a difference!!!!

Other than that treatments are going OK. A few strange side effects this time around. The vision, and numb toes. My toes are numb from the tip to where they form the foot. So I have to wear “close toes” shoes at all times. No pretty little open toes sandals.

~~ Jann and Keep-Her Service Dog Extraordinaire

Saturday, July 24, 2010

I'm Leaving on a Jet Plane

My Bags are packed I'm ready to go...Cause I'm leaving on A Jet Plane, don't know when I'll be back again ---- O Baby I hate to goooooooooooooooooo!!! OK OK so, I'm off on my next big adventure to NCI = National Cancer Institute. This trip my sister-in-law Michelle, and my Granddaughter Sarah are going with me, as well as Keep-Her.

Tuesday, July 20, 2010

20 July 2010

This is my off week.not much energy these days, so I get to sleep and sleep and sleep......

Quote of the week: When you do nothing, you feel overwhelmed and powerless. But when you get involved, you feel the sense of hope and accomplishment that comes from knowing you are working to make things better.--Pauline R. Kezer

Wednesday, July 14, 2010

Tuesday 13 June 2010 Cycle one.five, Day Fifteen Treatment Three

Well so far so good for this new Chemo drug. I’ve had none of the “usual” adverse side effects. I’ve had some more unusual ones (at least for me) weird yucky metallic, taste in mouth, starting about 10 min. after the drug starts to infuse, and lasting about 6 hours. I also have a sore tongue (like you burnt it with a hot drink) and tingling like it’s waking up after a dental procedure.

Quote of the Week: We make a living by what we get, we
make a life by what we give. -- Winston Churchill

Wednesday, July 7, 2010

Tuesday 05 June 2010 Cycle one.five, Day Eight, Treatment Two.

Well had my first chemo treatment here in Portland under the new protocol from NCI. It was another long hurry up and wait day. Keep-Her was good as gold and helped other’s take their mind off their problems for a little bit while they discussed dogs with me. It took one nurse two tries to get an IV started and she was about to give up when all of a sudden it worked great, had no problems with it after that. Then she wanted to give me IV form of the drug I was taking in Pill form from NCI----and I told her that I already had the medication. She said but WE always give it THIS way. No you don’t I had it in pill form with my last Chemo drug that I was getting here.
So far “knock on my little wooden head” I’ve not had any nausea or vomiting with this. Let’s hope that I keep it up.