Friday, November 28, 2014

28 November 2014 out of Remission report

28 November 2014 out of Remission report
This is most likely the hardest thing I’ve had to write. Over 20 years ago I was diagnosed with non malignant Breast Cancer. I underwent 4 years of treatment at that time for it and got it into remission.
In 2004 sometime I came out of remission without realizing it, even though all my exams came back clear, the sneaky cancer gene was growing. In 2008 the Cancer gene had a major “coming out party” and has been fighting me every which way I turn. Just about the time the Drs all get excited (I went thru 7 or 8 different drugs as well as two trial drugs in their last stage of trial before being approved by the FDA for general public use), this is when they would quit working.
So here I am 11 years (total 20+ years) later, I’m once again out of Remission, very tired and in Hospice, and just starting to settle into a routine with them. How long I have is anyone’s guess, but I’m getting weaker by the day.

Thursday, July 31, 2014

update July 2014

Not much to report I get my port flushed every 4 weeks and that's about all we do any more. say hi to the DR and yeah I'm still here, breathing and walking.

I've been busy training and showing dogs. 

the end of May 2014, Amber, Keep-Her and I took two weeks and went to Arkansas cause we could, We went to the diamond mines, and the off to Grace Land, and Beal Street, went to a ton of museums.  we'd see a "brown sign" (some historical place) and follow it to see where it lead to and what all we could see.  we we got home I place Shadow with a lovely family as he was not working out as a service dog for me. so now I have Mr Cotton (9 months old) (named for all the cotton gins and cotton we played with while back east)

Monday, March 24, 2014

March 2014 Update where has the time gone?

Over the holidays I came down with the horrid “Crud” that was going around and it knocked me for a real loop.  The dogs and I are now up to walking about 2.5 miles a day, since that was a major setback for me. It took a lot out of me. Since I only see the DR about once every two months while we wait for me to recover from that, not much to report here on the blog.
 I’m back to training my dogs and showing them again. So as the weather warms up we’ll continue our walking and push it as my strength rebuilds again and hopefully we’ll be back to at least 5 miles a day by summer. So I’m doing well, better than the DR have expected. They tell me whatever it is I’m doing keep it up.
I just celebrated my  birthday which I share with my Daughter Roxanne McKay, and a very close birthday (next day) with my Granddaughter Brookelin McKay, over this past weekend. It was a big one for Brookelin as she is now 18 (WOWzer!! Where has the time gone).

Tuesday, December 17, 2013

12 December 2013 update

Well the blood count has not recovered enough from the hit it took with the Halloween dose of Chemo. So we have decided to take a break until after the New Year to see if they have recovered or not. I feel fine, but it sure explains why I tire  so easily these days.

I'm still attempting to walk only 10,000 steps (which is about 4-5miles) a day with the dogs. it gives us something to do.  Nothing much else going on here, getting ready for Christmas with the family.

Thursday, November 21, 2013

Thursday 21 November 2013

So the fun begins again. Not much else to report

Friday, November 1, 2013

Thursday 31 October 2013 Happy Halloween

I’m Sad to say that after a 22 year long relationship I have had to change Oncologist. Since Dr R, was transferred to a clinic 1.5 hours away.

It appears from my latest CT Scan that my cancer has decided to work on the “other” spots that have been dormant so far, and that I’m going to need to be seeing an Oncologist on a more regular basis, I/we have decided that the 1.5 hour drive to visit with Dr R. (since his move) is going to be a bit much.  I am also most likely going to have to have intravenous Chemo infusion again and that would be done up here. 

well we've met with the new DR, Dr B. she's really nice. she doesn't sugar coat anything. she's blunt and to the point, but she's not rude----make sense. She shoots from the hip very straight forward with her answers.

It was decided that I would start with drug #7 today and see how that one works or doesn't.  It's a 3 hour infusion once every 3 weeks. fun and games NOT!
The view from my infusion chair today.

Thursday, October 17, 2013

12 Sept 2013 - 17 Oct 2013

I am remiss in that I have not been keeping my blog updated well at all. My last Dr appointment was 12 September 2013 at that time Dr R ordered blood test and a CT Scan to see where we were.
On Thursday 10 October 2013 I had my CT Scan done. I received an email with some not so good news.  The current drug is no longer working, and Dr R is recommending another IV medication. Said that he would call me in a day or two.
Well a week later, DR finally called back and we are going to start the new drug, #7 next Thursday 24 Oct 2013 that is if we can fit in on the clinics schedule. this one is only done once every 3 weeks.